Dementia Caregivers Share Their Stories: A Support Group in a Book

• Publisher:   Vanderbilt University Press
• Number Of Pages:   288
• Publication Date:   2005-06-10
• ISBN-10 / ASIN:   0826514790
• ISBN-13 / EAN:   9780826514790

Replete with the powerful words of experienced caregivers, It Wasn’t Supposed to Be Like This is an essential guidebook for anyone who must attend to the needs of a loved one suffering from Alzheimer’s disease or another form of dementia. In these pages, members of caregivers’ support groups - representing twenty-six families and a variety of professions and income levels - speak candidly about the challenges they have faced at every step in the caregiving process, from recognizing early symptoms of dementia to dealing with its advanced stages.

Highlighting the ingenuity and resourcefulness of caregivers, the book brims with inspirational stories, practical advice, and creative approaches to problem-solving. Among the issues addressed are: Becoming a caregiver, whether for a spouse or parent Dealing with the personality changes caused by dementia, from anxiety and paranoia to hallucinations and impulsive behavior Keeping dementia sufferers meaningfully involved in life Handling the emotions and stresses of caregiving Seeking help through support groups and other sources, including medical professionals, clergy, and other family members

The authors, who have both been caregivers themselves, augment their interviewees’ stories with connective commentary and their own personal stories. A useful resource section is included to refer readers to associations and help-lines.

I am a practicing neuropsychologist who frequently works with families who are coping with dementia in their loved ones. This is the best book I've read on caregiving for a loved one with dementia to date. It has a great deal of helpful information about the daily experiences of caring for a loved one with dementia. More importantly, however, it sensitively addresses many of the deeply emotional issues that arise in most situations. For this reason, I bought my mom a copy for her use in coping with my dad's dementing illness and will be recommending this book to my patients as well.

If I could only buy one book to help me get through a family member's dementia this would be it. I have read it, underlined it, quoted it and used it. It is a source of information and comfort. This is a must buy!!

This book is absolutely wonderful. Other books on caregiving were too clinical. This book is like having a wonderful conversation with friends who have been through what you are experiencing. The book offers the perspectives of many different caregivers which was very helpful because the nature of the dementia differs for many people. There were helpful tips and suggestions and words of advice from caregivers and this was presented in short easy to digest segments.

This book is one of the best books on caregiving and dementia. It gives real life stories and situations that one can really relate to. The authors have done a great job. Each chapter is about a different issue in the life and path of the person with dementia as well as ones about the caregivers. You will see so much of yourself and the person you caregive for in these pages. I gained further insight into what to do in many situations I have encountered as a caregiver. Good stuff and highly recommended.

I am a caregiver to my 90yr old blind mother who suffers from vascular dementia as well. This book was written by other caregivers with information , questions and answers that can only be appreciated by those who care with someone with this type of illness. The book covers many types of dementia, whether it be Alzheimers, vascular or others. What is really important is that the book encourages the caregiver to take care of themselves if they are to be able to take care of their patient.

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